Steve, same here.
I was fortunate enough to room with some nurses while at Uni.
It was one of them that spotted it and recommend that I get my GP to refer me to the (at the time) only sleep research centre in the U.K., which happened to be where she was working.
After fighting my Gp for almost a year (he was trying to give me loads of drugs, including some quite serious amphetamines! , but one of my other roommate was a toxicologist who told me what not to take!) I was finally referred.
3 months later I happily rejoined the human race... mostly anyways...